Sickle Cell Disease

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Hope for a Neglected Condition

Hope for a Neglected Condition

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An interview with an organizer and activist born with sickle cell disease in the DRC, plus a leading medical expert

A young Black girl in a white t-shirt with a ponytail sits next to her mother who has short hair and is wearing a black t-shirt on a tattered red and leather couch in front of a white wall

A Lifelong Struggle With Sickle Cell Disease

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The most common inherited disease worldwide is often ignored by health-care providers and policymakers

Kenya's Greatest Sickle Cell Disease Advocate

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Lea Kilenga Masamo is destigmatizing a rare genetic condition to improve care for forgotten patients

Kenya's Greatest Sickle Cell Disease Advocate